Snowflakes and Spoons

2016: From Wheelchair to first place This year has been one of   miracles   and hard work. In January 2016 I went on a family holiday to Dullstroom. I was so physically weak, my husband had to push me around this tiny tranquil town in a wheelchair. For short distances, I was able to use my walking cane, but facing a set of stairs felt like trying to climb a cliff face. I didn't know how I was going to keep on going much less working. Flash forward to December 2016. I am working 27 hours a week. I am independent in driving and all my self-care.  Even better than that, I have been able to not just start competing in dog agility but, win a few first places! What was my secret potion, you may ask? Honestly, there was no one specific thing, but a combination that worked for me. Just like replacing the blocks of my Jenga Tower . 1)      Having the right medical team I am privileged to work within the medical field and always have a...

The Risks and Benefits of Awareness June has been Myasthenia Gravis Awareness Month. I have experienced the privilege of writing my own posts and memes. I have also been featured in one guest blog and interviewed by our local paper . I honestly feel that this the most awareness I have ever spread on the social media front. The highlight from this is the increased support I have gained from my fellow Krugersdorpians, chronic illness warriors, friends and family. My blog, Facebook page and Twitter account have never before had so action! The downside has been the negative comments. I understand that by writing about my life and MG, I open myself up to the potentiality of these comments, but they still hurt. Before I blogged I was open to speaking about my diagnosis. Since then I have realised that there is a difference between diagnostic disclosing and full disclosure. Saying I have MG and these are my symptoms  to letting people into your heart. Letting them ...