Snowflakes and Spoons

Walk a mile in a pair of MG shoes Myasthenia gravis is a chronic neurological autoimmune disease with no current cure. It is listed as a rare disease. Through advocacy and awareness, we strive to educate, support and give hope. If you have ever wondered what it is like to live daily with MG? Why not take a read about how it feels to walk in our shoes. Brain fog clogs   Heavy, inflexible and embarrassing (if you're not from the Netherlands). You can walk or shuffle in these foreign foot coverings, but there is no running in brain fog clogs. You can be in the middle of a sentence and struggle to think of a common word. ‘Please pass the …… thingy….with the lid.... the umm….jam!’ It's more than being forgetful, it's like your trying to remember a new language. Scuba flippers As you fit them on, they snugly hug your feet. You can imagine yourself gliding through the water like a mermaid. The only problem is that you are still on land, mile...

Speaking your mind!   *In South Africa to dis something is to show disrespect Approximately 100 muscles of the chest, neck, jaw, tongue and lips are needed to work in a synchronised manner in order to produce one sentence (1). Being able to communicate is an essential part of human existence. Speech is a main source of communication, however thankfully not the only method. When in crisis, the muscles activating speech are also affected. While I might  sound like I'm drunk or that I'm trying to talk while playing the game chubby bunny, I am actually trying my best to get my message across. The first time I had speech difficulties was when I was trying to help my younger sister with her  math homework. She thought I was making fun of her as my voice changed to a nasal squeaking/strangled duck sound. In the moment I couldn't even explain, all I could do was wait until my muscles were slightly rested and then explain what had happened. The second time,...