Sister of a Warrior

A sisterly love language

This month's blog posts seem to be following the theme of family. While I was down in Cape Town on holiday, my sister gave me this piece which she had originally written on her blog in 2012.


My sister laughs with me, cries with me and we go crazy...

My sister is an amazing lady and superwoman in disguise. She has given me knowledge since a small age about different topics and has helped me. Maybe it's because of the situations we encountered together or when I just wanted to watch Greys Anatomy with her.

She is one of my biggest fans in everything I do. Yes, we do get mad at each other, but that's what sisters do. They can't stay cross for long or sad. She is the one who makes amazing flapjacks and sings songs with me out loud.


She is a blessing to me from God and is my pookie. My sister allows me to follow my heart, but I always know that she will be there to help me sew my heart back together if things go south.

My sister is one of a kind and I love her to the moon and back.

Besides being grateful and humbled by her post, I also noticed some other things.
 ‘Quality Time’ stands out clearly our love language and that she didn't mention MG once.
When I asked if she wanted to add or change anything about the post, she replied, ‘No? It describes who you are to me.’

Four years ago I felt I was in a different space then than I am now. I had had my thymectomy and was working a full day with only the essential medication keeping my levels stable. Only my close circle knew of my warrior moments. Now the tables have turned and my life is easily accessible to the public. I feel that MG has become more of my identity and it makes me wonder if I would still be seen in the same light?
It was reassuring to hear that my sister still values our quality time and that this is the most important thing to her. 





Comments

  1. Kim Penix26 July 2016 at 19:46

    Loving and supportive family makes you remember who you are, deep down. In this case, a wonderful sister - not a patient. Sweet words from your sister!

    ReplyDelete
  2. Rick Phillips27 July 2016 at 03:22

    As an only child I never had the privilege of having a brother or sister. I miss not having a sister even more after reading your blog.

    ReplyDelete
    Replies
    1. Snowflakes and Spoons27 July 2016 at 10:47

      It is a privilege, one that I feel many people neglect at times. Thanks for highlighting this issue

      Delete
  3. Kate28 July 2016 at 17:09

    As a sister of someone with MG, I identify 100% My sister is first and foremost her gorgeous, bubbly, wonderful person we all love and treasure...MG allows us extra time to bond and appreciate her. It reminds me what a special gift she is to us and makes me appreciate the good times even more. NOTHING replaces a sisters love

    ReplyDelete
  4. Snowflakes and Spoons28 July 2016 at 18:25

    Couldn't agree more!

    ReplyDelete
  5. matina2 May 2022 at 06:34

    I started on COPD Herbal treatment from Ultimate Life Clinic, the treatment worked incredibly for my lungs condition. I used the herbal treatment for almost 4 months, it reversed my COPD. My severe shortness of breath, dry cough, chest tightness gradually disappeared. Reach Ultimate Life Clinic via their website at www.ultimatelifeclinic.com . I can breath much better and It feels comfortable!

    ReplyDelete

Post a Comment

Popular posts from this blog

Exercise for Myasthenia Gravis: a necessity not a luxury

Image
Exercise: a necessity not a luxury. If I saw this post a year ago, I would never have clicked on it. I was always tired and felt like a barely made it through the day. When people traditionally talk about exercise routines words like 'sweat' 'pushing the limits' 'weight loss' 'body building' jump to mind. While most chronic Warriors would love to engage in this type of exercise, it is unrealistic for the majority of us. A regular exercise routine has helped me to improve my health, therefore I wanted to share my insight with you.  Suffering from Myasthenia Gravis, exercise can sometimes be seen as contradictory. In short, the strain on our voluntary muscles makes them weaker. However, we still need our muscles to move and engage in life or we risk becoming complete couch potatoes. Therefore a guided balance is needed. Literature notes the following benefits of exercise therapy for chronic diseases:   1 2 3   -          Impr
Read more

All you need to know about shelf-life and storage of Mestinon

Image
Mestinon: Storage and Shelf-life http://www.meda.co.za/ Mestinon (pyridostigmine)  is a lifeline for Myasthenia Gravis Warriors such as myself. I rely on it to keep my muscles functioning and take it every 4 hours. Without it, I can feel my eyes drooping and my muscles slowly turning to mush. When we had a postal strike in South Africa, I ran out of Mestinon. ‘Perhaps in three weeks’ I would receive my medication was their verdict. I had to go from pharmacy to pharmacy trying to source Mestinon at my own cost. After this, I vowed to always have some spare. So on a good day, I would stretch out my doses. I now have about a month’s supply extra. My concern was:  What is the shelf life of Mestinon and can I take it if it says it’s expired. Firstly Storage of Mestinon is essential as to maintain the drug's potency. -          Keep your tablets in the bottle until it is time to take them. I pack my medication out weekly in a medication dispenser. This helps me save
Read more

Therapeutic Journaling

Image
Therapeutic Journaling Need a confidential, non-judge mental support system? Don't have a friend to call or a shoulder to cry on? Feel like you need an emotional detox? Why not try journaling? When I was first introduced to therapeutic journaling I was a sceptic. I had all the what ifs to back me up. What if someone finds it and reads it? What if I'm not disciplined enough to do it daily? What if I just don't have anything to write about? What if it's only negative? As a therapist I want to be honest with my clients. I will not suggest anything unless I see the benefit in it. Therefore, I needed to experience journaling for myself. I must admit, I was surprised by my experience and wanted to share my findings.   1)    Set the scene Before starting, make sure your sensory and physical needs are taken care of. I would never be able to focus in front of a TV or with a full bladder. I found a quiet environment suited me best. Whether it was in
Read more